zlacker

The day-to-day impact of being diagnosed is practically non-existant for me. It might explain "why" I might react to a specific stimuli but it doesn't stop the reaction. At best it's something to laugh about with my wife. It does also offer an early-warning system when I'm over stimulated and that I need to 'get home' soon.

>>UI_at_+(OP)
> The day-to-day impact of being diagnosed is practically non-existant for me.

Yeah, as the old adage goes: with an ADH?D diagnosis you get to try drugs like lisdex or methylphenidate (or the non-stim options if those aren't suitable), but with an Autism/ASD diagnosis you get some pamphlets, coffee morning invites and a reading list.

I don't have a formal diagnosis but my child does and that made me read lots on the subject. Authors like Eliza Fricker, Ellie Middleton, Pete Wharmby amongst others.

It's opened my eyes to many other related aspects, specifically Rejection Sensitivity Dysphoria (RSD) and Pathalogical Demand Avoidance (PDA) and how those play into both ADH?D and ASD. In reading about them I've worked out just how much they apply to my-undiagnosed-self and how understanding the triggers and recognising the early behaviour has allowed me to adapt to minimise their impact.

>>UI_at_+(OP)
For my sister, getting diagnosed was important to her because she always felt like she was broken but now sees herself as simply different. I'm not aware of any workplace accommodations she has requested but it has been good for her self-esteem, which is a benefit in of itself.

>>UI_at_+(OP)
Being able to laugh about it, and know what is going on however is huge. Especially compared to being shit on all the time by others and self blaming (a common pattern!).

>>UI_at_+(OP)
If you happen to have built a functioning support nets already, being diagnosed is at best a curiosity. If you didn't, or your existing ones have crumbled, it gives you tools to do that.

>>UI_at_+(OP)
Yeah, that's basically the best-case scenario: the diagnosis doesn't change who you are, but it gives you a map of the terrain

>>alexfo+F2
I don't know if PDA is real, one of the popular books on the subject is just a copypaste of the discussions on the facebook group.

Anyway I have it and it's crippling.

>>alexfo+F2
"Rejection Sensitivity Dysphoria" is not medically recognized and is literally just something a guy with a blog made up.

(Note, the guy with the blog is a doctor, but he specifically recommends certain medications for this that I don't think anyone else who discusses RSD online would agree with if they knew this.)

Personally, I think it just sounds like a description of anxiety.

>>Y_Y+o61
Intuniv/guanfacine helped me a lot with that and time blindness, but in exchange it makes you tired and affects your sex drive.

Also have to ramp off it, which is a problem if you run out or are traveling and can't get a refill.